PI, Associate Professor
Venla Oikkonen is an STS and gender studies scholar and an Associate Professor at Tampere Centre for Knowledge, Science, Technology and Innovation Studies (TaSTI). Venla leads the GenDis project. She has previously researched cultural aspects of vaccines, infectious diseases, population genetics, genetic ancestry testing, ancient DNA and evolutionary theory. Her research within GenDis focuses on endometriosis, self-tracking and hormones. Read more about Venla’s research.
Elina Helosvuori is a sociologist and science and technology studies scholar. In GenDis, Elina will use ethnographic methods to explore intersections of medical practices and experiences of chronic pain, focusing on surgical interventions to endometriosis. Her earlier work includes multi-sited ethnography about assisted reproduction in Finland, in which she explored the entanglement of clinical practices, laboratory labour and patient experience in fertility treatment practices. Elina works currently at Helsinki Collegium for Advanced Studies. Read more about Elina’s research.
Lilli Aini Rokkonen
Lilli Aini Rokkonen is a sociologist and a social and public policy scholar. In the GenDis project, she will focus on ethnographic research among Finnish migraine patient organizations and interview clinicians and patients dealing with chronic pain. Lilli´s earlier work has focused on feminist studies of motherhood and precarious work, and she holds a PhD from the University of Eastern Finland. Read more about Lilli´s research.
Maria Temmes is a gender studies and STS scholar. In the project, she will analyze biomedical research in endometriosis, migraine, and fibromyalgia and its impact on healthcare planning. Her previous research has analyzed systems medicine research in cancer from a feminist theoretical angle. Maria holds a PhD in Gender Studies from Central European University. Read more about Maria’s research.
Ahalya Ganesh is a Gender Studies scholar. In the GenDis project, they will work on a PhD thesis analyzing the implications of patient activism on the interactions and treatment negotiations between people having fibromyalgia and their clinicians. Their masters’ thesis was on the fetal personhood discourse and how it affects the realization of reproductive justice.
Academy Research Fellow, associate member
Henni Alava is an anthropologist and development studies scholar. She worked as a postdoctoral researcher in GenDis until August 2023 and is currently an Academy Research Fellow in anthropology and gender studies researching families’ experiences of pediatric persistent pain and its care in Finland. Henni continues to collaborate with GenDis as an associate team member. Henni’s earlier work has drawn on research in Uganda to explore the intersections of Christianity, politics, citizenship and gender. Read more about Henni’s research.
Professor, associate member
Mianna Meskus is a sociologist and STS scholar. Mianna is involved in the conceptual and theoretical work of the GenDis project, and co-authors papers on studying bioscience and drug governance through ethnographic methods. Her work explores the ethics, politics and peoples’ personal experiences in the biomedical governance of reproduction and aging. Read more about Mianna’s research.
Luna Dolezal, Associate Professor in Philosophy and Medical Humanities, University of Exeter, UK
Anna Durnova, Professor of Political Sociology, University of Vienna, Austria, and Faculty Fellow, Yale University Center for Cultural Sociology, USA
Andrea Ford, Research Fellow at the Centre for Biomedicine, Self and Society, University of Edinburgh, UK
Jennifer Hamilton, Professor of Legal Studies and Anthropology, Hampshire College, and Visiting Professor of American Studies, Amherst College, USA
Amade M’charek, Professor of Anthropology of Science, University of Amsterdam
Elina Oinas, Professor of Sociology, University of Helsinki
Celia Roberts, Professor in the School of Sociology, Australian National University
Ayo Wahlberg, Professor, Department of Anthropology, University of Copenhagen